As a neurodegenerative disease, ALS (or Lou Gehrig’s Disease) can result in a number of physical challenges which can lead to depression. Those caring for a loved one with ALS may become overwhelmed and feel unsure how to best help the person live life to the fullest and remain optimistic.
At Live Free Home Health Care, the Concord home health experts, we understand the struggles of ALS, and have put together some helpful resources to help make life a bit easier for family caregivers, including a video series, list of assistive equipment, and more. The following strategies can also help:
- People with muscle diseases, such as ALS, are capable thinkers even if they can’t communicate clearly. Discuss choices openly and make joint decisions regarding the person’s medical care.
- Ask if the person wants help before helping. Don’t take over tasks that still can be performed if the person is given adaptive devices and time.
- While sometimes it seems faster and easier for you to take over certain tasks, be patient and let the person complete the tasks that he or she can.
- Set up a computer and Internet access. Help locate and install adaptive technologies that enable computer use when movement is limited or absent. Computers provide entertainment and social interaction and enable the person with muscle disease to help with tasks such as paying bills, tracking down information, hiring services, and grocery shopping.
- Use adaptive devices. The use of assistive equipment like wheelchairs is a move toward independence, not away from it. Adaptive devices are available for many everyday tasks such as eating, opening jars and doors, buttoning or zipping up clothing, writing and taking a bath.
It’s important to remember that those living with ALS, and those who care for them, are not alone. The Concord home health experts at Live Free Home Health Care are honored to partner with you with specialized assistance that allows those with ALS to experience life more fully, and allows family members the opportunity to take some much-needed time to themselves to rest and rejuvenate. After all, taking care of yourself allows you to provide the best possible care for your loved one. Call us today at 603-217-0149 to learn how we can help.